1. Stevens Johnson syndrome foundation -the official site
  2. SJS foundation -Stevens Johnson syndrome discussion
  3. SJS/TEN bereavement group
  4. SJS kids support
  5. Support group for Stevens Johnson syndrome and toxic epidermal necrolysis
  6. Support group for patients with dry eye and corneal conditions regardless of the cause
  7. Stevens Johnson syndrome support /ning.com
  8. SJS support group of Holland (dutch)
  9. Italian Stevens Johnson syndrome support group (italiano)
  10. Spanish Stevens Johnson syndrome support group (espanol)
  11. Swedish EM/SJS/TEN support group (svenska)
  12. Avimedi -association of victims of medicines (francais, italiano, english, espanol, portugues, deutsch)
  13. Milne Stevens Johnson Syndrome Society


         | learn more |

 

The most common and serious long-term sequelae of Stevens-Johnson syndrome and TEN are the ocular complications.

If an amniotic membrane graft can be placed into the eye during the first 3-4 days of SJS/TEN most of the eye issues can be avoided.

Eye care is of utmost importance in this disease!! 
Consult your eye doctor early so they can detect any changes that may occur.

 | NEW ABSTRACTS | AMT dressing -video | sore or dry eyes | Dr. Scheffer Tseng´s website

 

 

Erythema multiforme (EM) is a medical term for skin eruptions featuring iris or target lesions. Doctors/medical experts like to use this term if the skin problem is localized, i.e. limited to small patches on the body.

 

Stevens Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) is an acute, self-limited disease, with high morbidity, that is potentially life-threatening.
Epidermal detachment may be extensive, to the entire skin surface.
Patients have severe blistering of the skin and mucous membranes including the mouth, eyes and genitals.
The main types of symptomatic treatment are the same as for burns.

 

Ocular involvement is common in patients with SJS and TEN.
Late complications are more frequent in patients with severe initial eye involvement but may also develop in patients without ocular symptoms during the initial reactive phase.

 

There's a growing body of evidence that if SJS is correctly diagnosed in the early stages and medically treated correctly, it will not get to the blistering and life-threatening stage.

 

SJS/TEN is essentially drug-induced. A few cases are related to infectious agents as mycoplasma pneumonia, or other viruses and bacteria. Some cases remain unexplained.

 

SJS/TEN after-effects can include:
painful eyes, dry eye syndrome, photophobia, ingrowing eyelashes, 

corneal ulcers,
lid/corneal scarring, symblepharon, blindness, stricture of the esophagus, liver damage, lung damage, cardiac diseases, asthma/allergy, runny nose, joint pain, loss of nails or hair, sun sensitivity, depression, chronic fatigue syndrome....